The pain and fatigue of lupus doesn’t just take a toll on your body. Affording medications can hurt your wallet.
Out-of-pocket costs for medications and uncovered portions of clinical visits can be a major headache — and cause some people to forego potential treatments altogether. While research and development of new medications is exciting, are the medications actually valuable if they are unaffordable to the people that need them? Rather than focus on this question, perhaps it’s better to ask this question: What tools exist to help with affording medications and medical treatments?
Studies have confirmed that financial strain negatively impacts health. One 2-year long study looked at the interaction of financial strain and the loss of personal control, which caused depression, impaired functioning, and decreased health.
While it can be overwhelming and psychologically tiring to manage the healthcare system (but hopefully these strategies may help!), it is important to attempt to minimize stress. A 2003 study (cited 64 times) found that psychological stress, in particular the daily stress of social duties and social relationships, may be associated with lupus flares. These tips may not help you explain what it’s like to have lupus to friends or acquaintances, but hopefully it can help you save a few spoons!