Why Doctors Misdiagnose Lupus (& What You Can Do!)

Comments (4)
  1. Amanda Boyle says:

    I’m sorry but I have to disagree about the ANA test, I always know when the Lupus is flaring and my ANA tests are always higher than previously ‘normal’.
    This was the first test I had back when I was diagnosed at 23, I’m now 61, I believe they’re an expensive test and feel this is the reason Dr’s hestitate.
    I also the have a range of other tests as well every time.
    Believe me when I say I can’t can’t count how many other Autoimmune Disorders I’ve been ‘Diagnosed?’ with.
    We more than anyone know our bodies and when there’s a problem.
    Thank you for your contribution. It was very helpful.

  2. Cynthia Manca says:

    Last week an Endocrinology doc said she didn’t understand my diagnosis of Lupus “because Lupus usually attacks internal organs”. Thank God that hasn’t happened yet but no-one has been able to tell me why I have 5 known places in my body of AVN (dying of bone), escalating numbers of UTI’s (4 different bacteria), muscle weakness in legs to the point I now need a cane & sometimes am unable to walk. I have all Dx’s in above #3 & more yet these docs have no answers but tell me I should not take so many antibiotics for UTI. Normal Rheum Factor is 0-35 mine is 264, antibodies very high also, no answers. I am tired of being treated like a hypochondriac. My Mother was treated the same before she died of ALS & my eldest Sister who died from complications to end stage renal failure (also w/Lupus). Lupus warriors are neither seen or heard by the medical community. Full Stop

  3. Marco Haamans says:


    1. brett says:

      Thanks for reading! 🙂

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