Mouth ulcers and oral sores are a common symptom of lupus, affecting around 50% of Lupus Warriors. These symptoms aren’t just painful. They may indicate increases in disease activity or even a coming flare.
A mouth ulcer or canker sore is a shallow injury in the cheeks, tongue, or other soft parts of the mouth. It is often surrounded by a “halo” of swollen skin. These ulcers, canker sores, and other injuries in the mouth are common, but they occur more frequently in people with autoimmune diseases like lupus.
Though not usually harmful, mouth ulcers are still wounds. They can get infected and provide an entry point for bacteria. Even outside of this, they are painful and can make eating and drinking difficult and unpleasant. These symptoms are more common for children with juvenile-onset lupus (jSLE). Oral ulcers can be an obstacle to getting the right nutrition and staying hydrated.
Too painful to brush due to ulcers on tongue
YES!!! I had to get a super soft tooth brush and gargle with Mylanta before brushing.
Ugh! Dealing with super painful mouth ulcers right now. My entire head hurts and I want to escape my own body! :’(
I’ve been having a lupus flare that’s got a few mouth sores. I can’t wear my dentures due to the pain. But I have these even when I am not having a flare up
I have had several flares and my Dr prescribed Nystatin. Oral rinse 3 times a day. I also use Biotine,mild mint,it helps sooth a dry sore mouth. Sojrens . I also see a hygenist every 4 months to help keep gums and teeth healthy.
I have had an ulcer for over 2 weeks. I have always been able to cure it in 2 to 3 days. Since it is taking so much longer I went to the Dentist to see if it was infected and told it wasn’t. I also use a compound prescription mouth rinse called Magic Mouthrinse. In addition I have a dental steroid paste as a second line of defense but that is also not helping. The dentist I saw yesterday stated the longer you have them they become resistant to the meds. He also stated if they last over 3 weeks they sometimes rewound the spot to create a fresh wound to help it heal. I’m a senior and have been dealing with this for years. I swear by my water pic . Beside putting bottled water in it I add peroxide as well as the latest listerine product for gum therapy. The Dentist was impressed with the state of my teeth & gums even though I have broke every tooth in my mouth, some 3 or 4 times. Anyone who doesn’t have Lupus or Sjögren’s has absolutely no idea of everything that comes with these progressive diseases. My depression is getting steadily worse.
Did you have any trouble getting insurance to pay for your Magic Mouthwash? My Rheumy prescribed it for me earlier this year when I was having an especially hard time with mouth sores, and my insurance refused to cover it and it was going to cost over $200! So, to say the least I suffered through without it and used sore throat spray. 😕
You can make your own. Use equal part’s mylanta,children’s benadryl and lidocaine. If you can’t get the lidocaine, you can use Kanka.
Ask your pharmacist to put it on a discount card. Mione was over 120 and I got it for 30
Ask your pharmacist to put it on a discount card. Mione was over 120 and I got it for 30
Ask your pharmacist to put it on a discount card. Mione was over 120 and I got it for 30
Don’t give it up! What helps me is I go to the theater. Where I don’t have to talk:) Hugs
I am slowly loosing all my teeth do to the mouth sores, and dry mouth issues, the Mary’s Magic Mouthwash Helps although not totally, once healed, make sure to keep some GUM, with you at all times, it works for me…keeps you mouth wet,(not dry) hopefully it will help someone else, just a thought. best of luck to all of us, it is a lifetime battle to the ones living with this disease. I personally have had it 20 years. love ta all
I highly recommend KANKA-Softbrush. It’s compact design makes it really easy to use. Effective at providing instant relief and has even promoted the healing process for me.
I’m not getting ulcers, but my tongue and the roof of my mouth burn. It’s like eating something extremely hot, but it happens no matter what I eat, even with cool or cold food. When I’m not eating, my gums and the outer edge of my tongue burn and tingle. Anyone else ever have this?
Yes I do! My lips and mouth are RAW!!! I almost had it cleared up – still have not been “officially” diagnosed- it’s been hard these past few years dealing with “managed care” – finally got the rash on my face which allowed me to figure out – we have to advocate for ourselves- these Drs are not actively trying to help us- especially Medicare DRs- I found this site today looking for herbal remedies for this- anyone know of any good websites for info? I started making herbal teas with ginger, holy basil, thyme, tumeric, green tea, honey, coco oil – warning stay away from garlic- it is an immune system stimulant for those who do not know and our immune system is steady in hyperdrive also 2 tbsp homemade apple cider vinegar every day – the mouth sores are a sign of what’s likely also going on in our stomach-
Yes I do! My lips and mouth are RAW!!! I almost had it cleared up – still have not been “officially” diagnosed- it’s been hard these past few years dealing with “managed care” – finally got the rash on my face which allowed me to figure out – we have to advocate for ourselves- these Drs are not actively trying to help us- especially Medicare DRs- I found this site today looking for herbal remedies for this- anyone know of any good websites for info? I started making herbal teas with ginger, holy basil, thyme, tumeric, green tea, honey, coco oil – warning stay away from garlic- it is an immune system stimulant for those who do not know and our immune system is steady in hyperdrive also 2 tbsp homemade apple cider vinegar every day – the mouth sores are a sign of what’s likely also going on in our stomach-
Yes I do! My lips and mouth are RAW!!! I almost had it cleared up – still have not been “officially” diagnosed- it’s been hard these past few years dealing with “managed care” – finally got the rash on my face which allowed me to figure out – we have to advocate for ourselves- these Drs are not actively trying to help us- especially Medicare DRs- I found this site today looking for herbal remedies for this- anyone know of any good websites for info? I started making herbal teas with ginger, holy basil, thyme, tumeric, green tea, honey, coco oil – warning stay away from garlic- it is an immune system stimulant for those who do not know and our immune system is steady in hyperdrive also 2 tbsp homemade apple cider vinegar every day – the mouth sores are a sign of what’s likely also going on in our stomach-
Yes I do! My lips and mouth are RAW!!! I almost had it cleared up – still have not been “officially” diagnosed- it’s been hard these past few years dealing with “managed care” – finally got the rash on my face which allowed me to figure out – we have to advocate for ourselves- these Drs are not actively trying to help us- especially Medicare DRs- I found this site today looking for herbal remedies for this- anyone know of any good websites for info? I started making herbal teas with ginger, holy basil, thyme, tumeric, green tea, honey, coco oil – warning stay away from garlic- it is an immune system stimulant for those who do not know and our immune system is steady in hyperdrive also 2 tbsp homemade apple cider vinegar every day – the mouth sores are a sign of what’s likely also going on in our stomach-
I have found using Kanka after brushing my teeth before bed, works great. Then during the day when then start hurting I use Kanka soft brush. The slim design can easily go in purse or pocket. This seems to heal them quickly.